Question:
I think it sometimes depends on where the test are done.I have found that most hospitals do fairly well,although I’v never been a part of a HMO.The private testing places are sometimes owned by a group of Drs. Of course ,I find these things out ,after the fact.My wife hurt her back in 91 and her neurosurgeon ordered a myleogram first thing.After about 6 water base myleograms,I found out her Dr. was part owner in the place he sent her for the myleogram.Each of the owners of the place had 1 day set aside for them to do myleograms. He Dr. was Tuesdays. She had to be there at 6:30 am to get ready,so we talked to the other patients,and the nurse,and found out everyone there was his patient.He had it all worked out.he saw patients on Mondays,did myleograms on Tuesdays,Off on Wendesdays,surgery on Thursdays,and saw patients again on Fridays.The other owners had their own day for myleograms too. I don’t know what it is now,but back then he charged between 5 and 6 hundred per myleogram,that was for the injection of the dye.There was a separate bill for the place where it was done. He got 5 or 6 hundred dollars for one shot,and the x-ray techs did the rest.That was the reason he wanted myleograms done first,He didn’t make anything on a CT or MRI scan. It was a year later that I found out about Arachnoiditis,and by then she had 3 surgeries including a fusion,and we both have Arachnoiditis !!! Time to cool off Lem – Hide quoted text — Show quoted text ->That is so frustrating! I’ve had spots show up on every MRI, x-ray, or CT >I’ve had since my myeolgram 20 years ago, and only once did a doctor >actually say that it was residual oil based dye. Getting an MRI tech to even >set the machine up correctly is frustrating. I specifically said I needed a >T2 weighted gandolinium enhanced MRI.. After an argument with my primary >care physician, she changed the request based on my reseach into "A. Even >with that knowledge, and the corrected request, the MRI technician performed >a T2 weighted scan, THEN did a gandolinium enhanced T1 weighted scan. I >still can’t figure out if they are trying to avoid looking for it, don’t pay >attention, or don’t care. >Anyway, I feel for you and your current problems. I’ve been having an >increase in symptoms as well, and certainly can empathize with you. I >started physical therapy, just to try to give myself a sense of control, but >it isn’t doing much to alleviate pain symptoms, and sometimes exacerbates >things. >Best wishes, >Rob > You need to make sure the MRI tech know how to set the machine and > knows what to look for.I had a MRI of my head and was told it was > negative,except for some white spots on the surface of my brain.He > said they didn’t mean anything,he had seen them before,but they were > considered some kind of fluke by the machine.That was before I knew > about Arachnoiditis,and the oil based dye. I found out later from > another Dr. that the white spots were most likely some of the dye left > over after the myleogram,since the sub-arachnoid space cover almost > the entire brain too. > Good Luck > Lem > >So it seem that the best way to determine if I have this is by an MRI >exam? > >Odd, I have had 3 maybe 4 mileograms, 3 epidurals and 3 -5 pain >injections > >into my spine, all about the same area. I would not be surprised giving >the > >amount of pain that I am in all the time that my back had developed this >on > >top of the disc and degenerative problems. One more reason to go for the > >MRI I am long over due for! > >Thanks for the link! > >> This is one of the best sites on Arachnoiditis,Dr. Sarah Smith has "A" > >> also,so she can see it from both sides. > >> http://www.backtalk.nildram.co.uk/arach.htm > >> Good Luck > >> Lem > >> >What is a good Arachnoiditis site? I want to go look at the symptoms >etc > >> >and see if this might be what my back has turned into? You pain >sounds a > >> >lot like mine, instead of into the face I get the shooting pain up the > >back > >> >of my neck and head into my forehead and eyebrow causing my eye to go > >fuzzy > >> >and my eyebrow to twitch uncontrollably, My neck and head kind of feel > >like > >> >the stingers I used to get when I played football, when this happens. > >> >> While taking a nap this afternoon I was awakened with a severe >pain > >> >> in the middle and 2 outside toes on my right foot.I have never had > >> >> that pain before,and may never have it again,but with this damm > >> >> Arachnoiditis when ever any of the scar tissue touches a nerve,then >I > >> >> get pain at the other end of it.Like this time,nothing is wrong with > >> >> my toes,but almost every nerve in the human body must go through the > >> >> spine to reach the brain.The sub-arachnoid space where the scar >tissue > >> >> is located runs the entire length of the spine(where the fluid is > >> >> ).also covers almost the entire brain. > >> >> The pain can be anywhere and any kind,from shooting to aching to > >> >> burning,etc. and one time dropped me to my knees.Ashooting pain from > >> >> the top ,left back, of my head went down the left side of my face >and > >> >> neck.I thought I had been shot.It made the whole left side of my >face > >> >> went numb,including half my tongue.It took about 15 minutes for the > >> >> feeling to come back.I happened when I turned my head to fast,I > >> >> guess.I turn my head slowly ,ever since. > >> >> I though I had hurt everywhere at one time or another,but it >seems > >> >> I was wrong !!!I wish I had never heard the word Arachnoiditis,come >to > >> >> think of it,I wish I had never heard the word"Doctor". > >> >> That pain gone now,so me to. > >> >> Lem
Response:
Lem I was dx’d w/ arachnoiditis in 1986. Over time I have had varying results from different pain meds, and types of pain seem to change as well. At its peak, I could not walk and any movement caused excruciating pain. I was hospitalized a number of times for pain control. Over the last several years the pain has been less, due in part to stretching exercise, giving the damaged nerves and membranes that surround the spinal cord a little more elasticity. I still have periods when the pain is very high and with "very close to end stage" liver disease, I cannot tolerate the levels of opioid analgesics I had grown use to. During the past year I have lost all feeling in most of both feet, and reflexes are absent. It is almost as if this is slowly progressing from my toes to my ankle. I do not want to rely on a wheel chair again for it took so long to work my way out of it. But there is nothing that can be offered that may slow down or stop this progression. Its a part of the diagnosis, I guess. If you haven’t already, there is a support group for arachnoiditis; http://www.cofwa.org that may prove helpful. Good luck. Dave L D Lamborne Home: http://painlinks.org
– Hide quoted text — Show quoted text -> While taking a nap this afternoon I was awakened with a severe pain > in the middle and 2 outside toes on my right foot.I have never had > that pain before,and may never have it again,but with this damm > Arachnoiditis when ever any of the scar tissue touches a nerve,then I > get pain at the other end of it.Like this time,nothing is wrong with > my toes,but almost every nerve in the human body must go through the > spine to reach the brain.The sub-arachnoid space where the scar tissue > is located runs the entire length of the spine(where the fluid is > ).also covers almost the entire brain. > The pain can be anywhere and any kind,from shooting to aching to > burning,etc. and one time dropped me to my knees.Ashooting pain from > the top ,left back, of my head went down the left side of my face and > neck.I thought I had been shot.It made the whole left side of my face > went numb,including half my tongue.It took about 15 minutes for the > feeling to come back.I happened when I turned my head to fast,I > guess.I turn my head slowly ,ever since. > I though I had hurt everywhere at one time or another,but it seems > I was wrong !!!I wish I had never heard the word Arachnoiditis,come to > think of it,I wish I had never heard the word"Doctor". > That pain gone now,so me to. > Lem
Response:
This is one of the best sites on Arachnoiditis,Dr. Sarah Smith has "A" also,so she can see it from both sides. http://www.backtalk.nildram.co.uk/arach.htm Good Luck Lem – Hide quoted text — Show quoted text ->What is a good Arachnoiditis site? I want to go look at the symptoms etc >and see if this might be what my back has turned into? You pain sounds a >lot like mine, instead of into the face I get the shooting pain up the back >of my neck and head into my forehead and eyebrow causing my eye to go fuzzy >and my eyebrow to twitch uncontrollably, My neck and head kind of feel like >the stingers I used to get when I played football, when this happens. > While taking a nap this afternoon I was awakened with a severe pain > in the middle and 2 outside toes on my right foot.I have never had > that pain before,and may never have it again,but with this damm > Arachnoiditis when ever any of the scar tissue touches a nerve,then I > get pain at the other end of it.Like this time,nothing is wrong with > my toes,but almost every nerve in the human body must go through the > spine to reach the brain.The sub-arachnoid space where the scar tissue > is located runs the entire length of the spine(where the fluid is > ).also covers almost the entire brain. > The pain can be anywhere and any kind,from shooting to aching to > burning,etc. and one time dropped me to my knees.Ashooting pain from > the top ,left back, of my head went down the left side of my face and > neck.I thought I had been shot.It made the whole left side of my face > went numb,including half my tongue.It took about 15 minutes for the > feeling to come back.I happened when I turned my head to fast,I > guess.I turn my head slowly ,ever since. > I though I had hurt everywhere at one time or another,but it seems > I was wrong !!!I wish I had never heard the word Arachnoiditis,come to > think of it,I wish I had never heard the word"Doctor". > That pain gone now,so me to. > Lem
Response:
You need to make sure the MRI tech know how to set the machine and knows what to look for.I had a MRI of my head and was told it was negative,except for some white spots on the surface of my brain.He said they didn’t mean anything,he had seen them before,but they were considered some kind of fluke by the machine.That was before I knew about Arachnoiditis,and the oil based dye. I found out later from another Dr. that the white spots were most likely some of the dye left over after the myleogram,since the sub-arachnoid space cover almost the entire brain too. Good Luck Lem – Hide quoted text — Show quoted text ->So it seem that the best way to determine if I have this is by an MRI exam? >Odd, I have had 3 maybe 4 mileograms, 3 epidurals and 3 -5 pain injections >into my spine, all about the same area. I would not be surprised giving the >amount of pain that I am in all the time that my back had developed this on >top of the disc and degenerative problems. One more reason to go for the >MRI I am long over due for! >Thanks for the link! > This is one of the best sites on Arachnoiditis,Dr. Sarah Smith has "A" > also,so she can see it from both sides. > http://www.backtalk.nildram.co.uk/arach.htm > Good Luck > Lem > >What is a good Arachnoiditis site? I want to go look at the symptoms etc > >and see if this might be what my back has turned into? You pain sounds a > >lot like mine, instead of into the face I get the shooting pain up the >back > >of my neck and head into my forehead and eyebrow causing my eye to go >fuzzy > >and my eyebrow to twitch uncontrollably, My neck and head kind of feel >like > >the stingers I used to get when I played football, when this happens. > >> While taking a nap this afternoon I was awakened with a severe pain > >> in the middle and 2 outside toes on my right foot.I have never had > >> that pain before,and may never have it again,but with this damm > >> Arachnoiditis when ever any of the scar tissue touches a nerve,then I > >> get pain at the other end of it.Like this time,nothing is wrong with > >> my toes,but almost every nerve in the human body must go through the > >> spine to reach the brain.The sub-arachnoid space where the scar tissue > >> is located runs the entire length of the spine(where the fluid is > >> ).also covers almost the entire brain. > >> The pain can be anywhere and any kind,from shooting to aching to > >> burning,etc. and one time dropped me to my knees.Ashooting pain from > >> the top ,left back, of my head went down the left side of my face and > >> neck.I thought I had been shot.It made the whole left side of my face > >> went numb,including half my tongue.It took about 15 minutes for the > >> feeling to come back.I happened when I turned my head to fast,I > >> guess.I turn my head slowly ,ever since. > >> I though I had hurt everywhere at one time or another,but it seems > >> I was wrong !!!I wish I had never heard the word Arachnoiditis,come to > >> think of it,I wish I had never heard the word"Doctor". > >> That pain gone now,so me to. > >> Lem
Response:
Hi Dave L. I just got my electric wheel chair 2 weeks ago.I got a ramp last weekend,and was going to get a cargo carrier on the back of my car this weekend,but it’s been raining and cold,so I’ll let it wait a few days.It turns out the exhaustion and weakness that has put me in the chair.If I walk to the bathroom,I’ll have to rest before I can come back. Good Luck Lem – Hide quoted text — Show quoted text ->Lem >I was dx’d w/ arachnoiditis in 1986. Over time I have had varying results >from different pain meds, and types of pain seem to change as well. At its >peak, I could not walk and any movement caused excruciating pain. I was >hospitalized a number of times for pain control. Over the last several years >the pain has been less, due in part to stretching exercise, giving the >damaged nerves and membranes that surround the spinal cord a little more >elasticity. I still have periods when the pain is very high and with "very >close to end stage" liver disease, I cannot tolerate the levels of opioid >analgesics I had grown use to. During the past year I have lost all feeling >in most of both feet, and reflexes are absent. It is almost as if this is >slowly progressing from my toes to my ankle. I do not want to rely on a >wheel chair again for it took so long to work my way out of it. But there >is nothing that can be offered that may slow down or stop this progression. >Its a part of the diagnosis, I guess. >If you haven’t already, there is a support group for arachnoiditis; >http://www.cofwa.org that may prove helpful. >Good luck. >Dave L >D Lamborne >Home: http://painlinks.org > While taking a nap this afternoon I was awakened with a severe pain > in the middle and 2 outside toes on my right foot.I have never had > that pain before,and may never have it again,but with this damm > Arachnoiditis when ever any of the scar tissue touches a nerve,then I > get pain at the other end of it.Like this time,nothing is wrong with > my toes,but almost every nerve in the human body must go through the > spine to reach the brain.The sub-arachnoid space where the scar tissue > is located runs the entire length of the spine(where the fluid is > ).also covers almost the entire brain. > The pain can be anywhere and any kind,from shooting to aching to > burning,etc. and one time dropped me to my knees.Ashooting pain from > the top ,left back, of my head went down the left side of my face and > neck.I thought I had been shot.It made the whole left side of my face > went numb,including half my tongue.It took about 15 minutes for the > feeling to come back.I happened when I turned my head to fast,I > guess.I turn my head slowly ,ever since. > I though I had hurt everywhere at one time or another,but it seems > I was wrong !!!I wish I had never heard the word Arachnoiditis,come to > think of it,I wish I had never heard the word"Doctor". > That pain gone now,so me to. > Lem
Response:
That is so frustrating! I’ve had spots show up on every MRI, x-ray, or CT I’ve had since my myeolgram 20 years ago, and only once did a doctor actually say that it was residual oil based dye. Getting an MRI tech to even set the machine up correctly is frustrating. I specifically said I needed a T2 weighted gandolinium enhanced MRI.. After an argument with my primary care physician, she changed the request based on my reseach into "A. Even with that knowledge, and the corrected request, the MRI technician performed a T2 weighted scan, THEN did a gandolinium enhanced T1 weighted scan. I still can’t figure out if they are trying to avoid looking for it, don’t pay attention, or don’t care. Anyway, I feel for you and your current problems. I’ve been having an increase in symptoms as well, and certainly can empathize with you. I started physical therapy, just to try to give myself a sense of control, but it isn’t doing much to alleviate pain symptoms, and sometimes exacerbates things. Best wishes, Rob
– Hide quoted text — Show quoted text – > You need to make sure the MRI tech know how to set the machine and > knows what to look for.I had a MRI of my head and was told it was > negative,except for some white spots on the surface of my brain.He > said they didn’t mean anything,he had seen them before,but they were > considered some kind of fluke by the machine.That was before I knew > about Arachnoiditis,and the oil based dye. I found out later from > another Dr. that the white spots were most likely some of the dye left > over after the myleogram,since the sub-arachnoid space cover almost > the entire brain too. > Good Luck > Lem >So it seem that the best way to determine if I have this is by an MRI exam? >Odd, I have had 3 maybe 4 mileograms, 3 epidurals and 3 -5 pain injections >into my spine, all about the same area. I would not be surprised giving the >amount of pain that I am in all the time that my back had developed this on >top of the disc and degenerative problems. One more reason to go for the >MRI I am long over due for! >Thanks for the link! >> This is one of the best sites on Arachnoiditis,Dr. Sarah Smith has "A" >> also,so she can see it from both sides. >> http://www.backtalk.nildram.co.uk/arach.htm >> Good Luck >> Lem >> >What is a good Arachnoiditis site? I want to go look at the symptoms etc >> >and see if this might be what my back has turned into? You pain sounds a >> >lot like mine, instead of into the face I get the shooting pain up the >back >> >of my neck and head into my forehead and eyebrow causing my eye to go >fuzzy >> >and my eyebrow to twitch uncontrollably, My neck and head kind of feel >like >> >the stingers I used to get when I played football, when this happens. >> >> While taking a nap this afternoon I was awakened with a severe pain >> >> in the middle and 2 outside toes on my right foot.I have never had >> >> that pain before,and may never have it again,but with this damm >> >> Arachnoiditis when ever any of the scar tissue touches a nerve,then I >> >> get pain at the other end of it.Like this time,nothing is wrong with >> >> my toes,but almost every nerve in the human body must go through the >> >> spine to reach the brain.The sub-arachnoid space where the scar tissue >> >> is located runs the entire length of the spine(where the fluid is >> >> ).also covers almost the entire brain. >> >> The pain can be anywhere and any kind,from shooting to aching to >> >> burning,etc. and one time dropped me to my knees.Ashooting pain from >> >> the top ,left back, of my head went down the left side of my face and >> >> neck.I thought I had been shot.It made the whole left side of my face >> >> went numb,including half my tongue.It took about 15 minutes for the >> >> feeling to come back.I happened when I turned my head to fast,I >> >> guess.I turn my head slowly ,ever since. >> >> I though I had hurt everywhere at one time or another,but it seems >> >> I was wrong !!!I wish I had never heard the word Arachnoiditis,come to >> >> think of it,I wish I had never heard the word"Doctor". >> >> That pain gone now,so me to. >> >> Lem
Response:
While taking a nap this afternoon I was awakened with a severe pain in the middle and 2 outside toes on my right foot.I have never had that pain before,and may never have it again,but with this damm Arachnoiditis when ever any of the scar tissue touches a nerve,then I get pain at the other end of it.Like this time,nothing is wrong with my toes,but almost every nerve in the human body must go through the spine to reach the brain.The sub-arachnoid space where the scar tissue is located runs the entire length of the spine(where the fluid is ).also covers almost the entire brain. The pain can be anywhere and any kind,from shooting to aching to burning,etc. and one time dropped me to my knees.Ashooting pain from the top ,left back, of my head went down the left side of my face and neck.I thought I had been shot.It made the whole left side of my face went numb,including half my tongue.It took about 15 minutes for the feeling to come back.I happened when I turned my head to fast,I guess.I turn my head slowly ,ever since. I though I had hurt everywhere at one time or another,but it seems I was wrong !!!I wish I had never heard the word Arachnoiditis,come to think of it,I wish I had never heard the word"Doctor". That pain gone now,so me to. Lem
Response: